post

They’ve never been mine.

Joseph Wedding 1

I got an email from my mother asking me if I’m still at the address I’ve been at for the past NINE years.

She was thoughtful enough to include pictures of the wedding of the “half-brother” that I was never allowed to claim. Pictured on the left (of the three) is the widow of the brother I wasn’t allowed to mourn and wasn’t ever encouraged to reconnect with. Not even when he called my name on his fucking deathbed.

2023 has sucked fucking balls for me having brothers.

I did try, I’ve always tried. But I now realise what folly it ever was to hope that someone who ran out on her youngest (at the time) son multiple times would ever have any insight into how to help build the relationships between he and the sons that she clearly favoured.

The oldest got as much of her as he could, and it was a lot. Far more than I ever got. She never noticed, and is oblivious to the pain I feel when she’d recount stories of him popping in to have her do his laundry or make his favourite meals on off-weekends. Things that I got to do twice.

The youngest got more of her than either of us other two. She was actually there in his life as he grew up from birth. He’s actually the only son she’s ever really had. I’ve never heard from him on his own, and haven’t had contact with him since he was an obnoxious dingdong 7-yo. She’s also oblivious to the pain I might feel about my own childhood as she’d send me emails over the years of his school accomplishments and the events she’d attend there. Averaging an email every fortnight, she rarely missed an opportunity to tell me all about whatever was going on in his life, completely with pictures, even though I have never, ever asked.

One might suggest that I’m having my nose rubbed in it, yet I still, to this day, have no idea what grievous sin i perpetrated other than falling in love with someone on another continent. If there’s something else, or something that I actually did or said, I’d fucking LOVE to know. I really would.

Because otherwise, that’s pretty cold, and fuck that shit.

Exley Kids Family Photo Session – 2023

Family pics from a photo session at Viva Photography in July 2023.

Click on the image to get the BIG sized file (opens in new tab).

All the Kids - Black BG

All the Kids – Black BG

All the Kids - White BG

All the Kids – White BG

All the Kids and Bun - Black BG

All the Kids and Bun – Black BG

Damon and Drew

Damon and Drew

Damon and Stevie 1

Damon and Stevie 1

Damon

Damon

Drew

Drew

Exley Kids - Black BG

Exley Kids – Black BG

Exley Kids - Whit BG

Exley Kids – Whit BG

Exley Kids and Bun - White BG

Exley Kids and Bun – White BG

Jade and Drew

Jade and Drew

Jade

Jade

Stevie and Jade

Stevie and Jade

Stevie

Stevie

TT on Boots

TT on Boots

Struggling

It should come as no surprise that my mental health isn’t doing great. I have no idea if it’s a combination of the Main Purpose of the drugs I’m on or if it’s simply a long-lasting side effect of simply being in pain All The Time, but I’ve never been this type of anxious for this long in my life before.

Well, maybe during football season. I was anxious all the time then too. I hated football. It was hard, everyone else was so effortlessly good at it, and I struggled. Everything I was doing somehow revolved around football practice.

Spanish class was boring and the room too hot, but I couldn’t get sleepy because I had to be wide awake for football practice.

It was meatloaf and cornbread day at the cafeteria, with apple crumble for dessert, but I couldn’t get seconds because then I’d be too full for football practice.

I couldn’t run around having Adventures on a Sunday because then I’d be tired or sore the next day at football practice.

The only time I felt free, when I was truly unencumbered by the thoughts, was immediately after a game on Friday night. The energy, the lights, the crowd, all I could hope for would be to not embarrass myself. To be a good teammate, a good cheer squad from the sidelines, be a good player when I was allowed on the field. We’d win, of course, and we’d all be… happy. Friends. It was the only time I felt good.

Saturday would be fine, but I’d stress the entire time about having The Most Fun I could during the only time I was free. If I didn’t pack everything I could in during that time, then I’d wasted the weekend, and I had an even more horrible week waiting for me. That I’d have to suffer through it after not living My Best Life and that would be even harder.

The only respite, the only rest, the only time it ever let up, was when the season was over and my responsibilities waned. Then I was just bored. Not as anxious. Until I thought about next season anyway.

When I look back at it now, I can see that’s no way to live. I can see that I had many issues beyond just my feelings toward football practice. It was just the only time I was visibly pushed to failure, worked so hard that I dropped, and I was terrified I’d never Be Enough in this life.

That, more than anything, is likely the prevailing fear that I have always possessed. Deep in my chest, hiding somewhere between my heart and my lungs, making my pulse louder and breathing harder. It’s always been there.
**
And it’s here now. It’s here pretty much all the time. Unless I’m completely losing myself in something like a wonderful game on the Playstation (or even my phone) then I’m feeling anxious. The garbage stacks up, the floor gets dirtier, the rabbit’s cage needs changed, I need to shower, the dishes stack up, the kids need taken places and then brought back and everyone needs fed almost all the damn time.

It’s making it hard to fall asleep in the mornings, when I feel like I need it most. I lay there and feel the tightness in my chest. Wondering what will go wrong, what will wake Jo up, what will break that day, what will bring The Authorities to our door for some new violation, some fresh way to punish us and keep us flattened on the pavement with their knee on our neck.

I don’t know what to do about all this, but I know that I need to do something. Instead, I eat. And escape into things. And sit around getting fatter and be in pain.

Oof. I really need to work on fantasising about when this is over, I know that. But now that there’s been some mix-up with the referral, I still don’t have a date yet. Fucking shitfuck, I’m not even on the waitlist.

I suppose if I put my Psychology Hat on, I’d see that I’ve started to decline mentally since I found out that they fucked my referral and I’m not even waitlisted at either hospital. Fuck.

4th of July, 2005

It feels like the real truth will never be known. But I know what I believe. I believe you were trying to abandon me for a final time.

I’ll never know what it was that you took. Because you’ll never tell me. Maybe because you don’t remember. Maybe you’ve killed the part of your brain that was capable of retaining that knowledge. Murdered the last witness to your crime. Maybe it died of natural causes. A victim of time and the spongy atrophy of an aging mind.

What I do know is that you took something. They confirmed it at the hospital. They then tasked me with searching around your house to find out. The house empty, your partner and her son up north, I felt like both criminal and cop while I dug through your garbage, rifled through your drawers and picked through your medicine cabinet. I found nothing.

Not nothing though. I found some crumpled-up pieces of paper. Your signature yellow lined notepad sheet filled with your even-more-signature calligraphy handwriting. A journal piece, a letter from yourself to yourself, yet discarded. Filled with your own navel-gazing on how I’ve found someone that is to be the centre of my universe, and how much that’s affecting you.

Was it a suicide note? I never found any other journals or your personal writings but then again, I wasn’t looking for them, was I? I was looking for empty pill bottles or popped-out blister packs. Something, anything, that could account for the massive amount of propylene glycol you had in your system. They couldn’t find a meal and the amount of alcohol you had didn’t account for it either. They weren’t toxicologists, but they’d seen enough to know that you’d have to drink about 600 bottles of white wine to get that much PG in your system.

Radiator fluid, or some other household chemical, was the best guess. Though I never found evidence of anything like that. And I looked. If that’s what happened, then you drank it straight from the bottle and politely put it back, then lay down on the back patio and waited to be found.

And I did find you.

You were asleep, or so I thought. The sun was setting on a hot but beautiful Rocky Mountain day. It was shaping up to be a lovely night to view the fireworks from just about anywhere. At first I felt tender, like you’d just tuckered yourself out doing yardwork or something. That would have been quite like you. Though napping wasn’t really your thing.

Then the sun set, and it cooled quite quickly, so I went out to put a blanket on you, ostensibly to look after you but my ulterior motive was to be just noisy enough, just jostly enough, that you’d wake up and we’d have a good laugh at how much you’d sacked out. But you didn’t wake up. I put the blanket on you and went back inside.

But worry became too much. I moved quickly past the point where I worried about the awkwardness of the situation, all anxiety about social pretense fell away and I stomped back out there and tried to wake you. I called your name, louder and louder, and then took you by the shoulders and gently shook you. I got more and more scared with every passing second, my heart starting to beat painfully in my chest.

Then, you woke up. You blinked your eyes in that confused squirrel kind of way that you’ve always had and looked right at me.

“I just wanted to feel better,” you said. Calmly, clearly, simple as.

“Okay,” I’d said, “That’s fine. But it’s getting cold out and–”

“I just wanted to feel better,” you said again. Same tone, same pitch, as if you hadn’t just said it a second before.

“Yeah ma, no probs.” I knew enough to know that when you were woken up you were a bit dumb at first. I figured I just had to ride this out.

“I just wanted to feel better.” You kept saying it. Sometimes you’d blink at me as if I’d just arrived, and you’d say it again. Sometimes you’d appear to be pondering something, then I’d call out “Mom!” and you’d turn and look at me with varying expressions, and you’d say it again.

And again.

I pulled you to your feet and walked you into the house. You walked on your own strength, though I had to guide you, and when I brought you into the living room you were happy enough for me to bring you to the couch. You didn’t need to be told to lay down, but you didn’t stop repeating the phrase.

“I just wanted to feel better.”

I got the pillows situated and I tried to make you comfortable, but you kept flinching and looking at me intensely, repeating the line over and over again. Sometimes your inflection was urgent, sometimes it was regretful, sometimes surprised. Always the same line, verbatim.

I told you that you were freaking me out, and that I was going to call 911. I gave you one last chance to say something different. I think I even said that if you said something different, then I wouldn’t call them. Then I think I said that if you wanted me to call them then you’d say the line again. I’m not sure what I was saying to you at that point, to be honest. I was freaking the fuck out.

The emergency operator wasn’t great, but she wasn’t bad. When they transferred me to the locals, I described what was happening and they said that they’d better get over there quick. I didn’t argue, and I said that I’d unlock the door and wait. I sat on the stairs and looked out the front door, almost afraid to keep being in the same room with you because you kept looking at me with recognition and my heart would leap in the hopes that you were finally in there, only to have my hopes dashed when you’d repeat that same fucking line.

Then my phone rang, and I wondered if it was the 911 people calling me back. But no, my new wife, calling from her morning in Australia. Ringing several hours before our scheduled time because she couldn’t shake the feeling that something was very, very wrong.

I don’t remember what I said to her other than that the emergency people were there and I had to go. She was great, very understanding, and asked that I contact her when I could.

The firefighters came in with a stretcher and didn’t bother talking to you for long before laying it out and getting you onto it. You didn’t seem to recognise them, and were maybe even a little frightened, so you didn’t open your mouth as much as you had when I was there. But when you did, you repeated that same goddam line. When they’d taken you out to the ambulance and were opening the doors, you looked up at one of them pleadingly, then repeated it again.

“I just wanted to feel better!”

Almost as if you thought that somehow you were talking sense, that you were explaining you didn’t need to be hauled away to the Emergency Room. That they shouldn’t pump your stomach and hook your veins to an IV.

I watched them go and followed in my truck, ignoring various traffic laws as I caught up to them. By the time I saw them wheeling you into the ER I couldn’t tell if you were still maddeningly repetitive, and I had to circle around for a place to park.

Time blurs in my memory at this point. Perhaps I went in and waited for some interminable amount of time to be told what was going on. Perhaps I went outside and rang my wife and spoke to her to calm myself down. Perhaps I just paced around. I don’t know.

What I do know is that they took me up to the ICU as soon as you were there, and stuck you in a room that was kind of like a huge aquarium. They must have sedated you because you were asleep when I got there and I met Joe. Quite possibly the greatest nurse in the history of nursing, he was everything I could have ever wanted. He had a rather imposing voice and boomed his name at you when you shifted and looked around with anxiety.

Blessedly, you’d stopped repeating the line, but you weren’t speaking at all now. At some point, you’d nodded at something he’d said and we both got excited that you might be nearing lucidity, but you still never uttered a word. Better than before, but still terrifying.

Joe talked you through how they were going to hook you up to all the tubes and wires and you were compliant, to a point. When he talked you through the process of inserting the catheter, you jerked roughly, trying to sit up. He held you with a firm hand, smoothly commenting that he figured you wouldn’t like that, but you still didn’t speak.

He talked to me with that same smoothness, working with me and bouncing ideas off in our search for what it was that you had done. Neither of us came up with anything but he was an enormous help in what might have happened and what I should be looking for.

When the doctor came in, a person I don’t even remember at all, Joe was noticeably deferential but when I kept speaking up and pointing out things that Joe had thought of, I remember the doctor being kind of a dick about it at first, like Ken Jeong in Knocked Up, but then settling down and agreeing with every single one of Joe’s ideas and points.

When they left, it was like they hadn’t even been, but I let Joe know anyway that he had solid ideas and was fifty times more helpful than the white-coated egotist. He gave me a look and then told me he’d stay with you while I went out for a smoke. I worked my way out to the parking lot and found a pay phone, ringing my wife back and talking with her through it all. She was, of course, amazing.

But for however great Joe was, nothing could have prepared me for that night. Joe was on a long shift and had promised me that he wasn’t going to leave me for long. And I needed him. Every 5 to 15 minutes you’d wake up and thrash, trying to either escape your bed or tear your tubes out of your arms. Joe was there for enough of them that he started just sticking by, hovering either in the hallway or in the room itself.

Then an even bigger emergency pulled him away. Some car accident had helicoptered in and it was an all-hands situation. I was left alone with you and your thrashing, fighting self. Boy, you’re strong too. I had no idea how strong you really were until I was fighting you to keep you from ripping your IV out. You were seriously dehydrated, dangerously so, and those fluids were vital. And boy, you fought.

The cadence was always the same though, almost like your repeated phrase from earlier. Wake up startled, grab for either the covers to get up or the tubes to pull them out. I’d then grab your wrists and hold your flailing arms from doing any damage. You’d fight, pushing and pulling your arms this way and that, sometimes just straight pushing and straining as hard as you could, to the point that I’d use my weight and hold you back.

Then, as quickly as the fit came on, it would go. Your strength would leave your arms and you’d lay back down. Mostly to fall immediately back to sleep, sometimes to simply go limp, staring blankly out the window. Either one of them might precede yet another thrashing fit. Sometimes minutes, sometimes a half hour, but never farther apart than that.

This went on all night. The entire night.

At first, I didn’t want to sleep, knowing I had to stay on top of things, but then I’d just get my hands in ready positions and wait. It was hours until a nurse came back and all they had to say was to tell me about what was going on with the emergency, and that Joe had sent his apologies. When I said to them that you were waking randomly and trying to rip your catheter and IV out and that I was the only thing stopping you from doing it, the nurse looked relieved and even commented the thanks that I was there.

She didn’t offer to help though. They were still so short-staffed that I was on my own. All night.

The only time I started to notice larger and larger gaps between your fits was when the sky started to brighten a bit. By the time I realised you’d gone over an hour without fitting, it was 5am and I fell asleep in the uncomfortable chair by your bed.

At about 8am, the nurse came in and was bustling about, gently waking me so I could clear out of the way of them taking your vitals and emptying your urine bag. They seemed satisfied that the fluids they’d been pumping you full of were flushing through your system. Whatever it was, whatever you’d done to yourself, you were through the worst of it.

I was cautioned that I might never know the full extent of whatever you’d done to your brain. You might have some brain damage, you might have nothing wrong with you at all. Only time, and someone that knew you, would tell.

TBC…

post

Who’s telling all the stories?

I don’t have a degree in Creative Writing. I haven’t even taken any classes. My degree is in Fine Arts because all they had for web-related stuff back in the day was called “Computer Science” and that didn’t quite fit for design.

I haven’t been traditionally published, I haven’t won any awards. I have only completed two manuscripts, run both through a smattering of Beta Readers, a pseudo-edit and then put ’em up on Amazon.

But… I have three kids. One adult who lives close by, one teenager who lives on the couch next to me and one pre-teen who lives in a little tent in the living room. All are neurodivergent, with the smallest being ASD-Severe. They take a lot of energy.

I have the best co-pilot in life with me, but it’s a lot of energy for both of us. She works very, very hard. Though she, like myself, is disabled.

We hurt, pretty much all the time. Something hurts, and sometimes it hurts badly enough that we’re unable to do things. Sometimes those things are big, like can’t always get up on the roof and clean the gutters out so Winter and its rains is Super Anxiety Times as to whether or not the house will flood. Sometimes those things are relatively small, like standing and walking. As one can imagine, that brings its own levels of anxiety.

And no, there is no help. We don’t have the money for things like hiring someone to do the gutters and the “Supports and Services” for people with disability are vague, ambiguous, difficult to track down and even harder to get them to give it to you clearly. If I wanted, I could get someone to come by and clip our toenails, do the dishes, take our little guy to the movies and drive us to the beach. But no one will come by for 15 minutes and cut the grass.

It’s a rather fuckety system. I haven’t given up trying though.

But the thing is, kids go to school, eat, play, talk, sing, dance and like treats and cartoons and stuff. I also like my wife so much that we spend every night together, streaming something cool and hanging out and flirting then creaking our way into bed way too late at night.

Where in there, if anywhere, is time to pump out the series of books, stories, novels and movie scripts that rattle around in my head?

Why is it that any time I see somebody that’s doing the job that I want, living the life of a published author that I dream of, they’ve got like, no kids, some sort of Writery Degree and have a backlist of about fifty books?

Oh sure, some of them have kids, and I’m sure their lives are all about them. But what is their co-pilot doing? Yep, making six-figures. I can tell you from Lived Experience, that making all that money makes some things a fuck of a lot easier. Only one of you spending 90% of their awake time ‘earning’ all that money means the other gets a lot more freedom.

When both of you spend 100% of your awake time looking after offspring or each other, getting just about anything else done is really, really hard.

But I can’t complain. I mean, I shouldn’t anyway. The ‘problem’ is me. Me and my skewed priorities.

See, I quit Corporate America for love and a new start far from my birthplace. Then I quit Corporate Australia for family. Then I quit Small Business Life to look after my people better. Now, instead of writing all these novels, I’m making cheese toasties and listening to what happened in dreams last night and watching Kangaroo Beach and playing with slime and giving endless pets to a Spoiled Rabbit on my lap. I’ll make a tea for my lovely co-pilot and then struggle in the toilet for 20 minutes.

I could ignore all these things and pump out novel after novel but, much like the six-figure job and careers and shit, it’s just not worth not doing all the other things.